Saturday, December 27, 2008

Seeing Invisible Disabilities

[This was first published in Moody Magazine, a few years before its unfortunate demise.]

Jesus had a way of seeing what others missed and ministering to those who were forgotten, shunned, or misunderstood. He touched and healed lepers when everyone else scurried away. He cared for those with chronic afflictions - such as congenital blindness and incurable hemorrhage - while others gave up. He bestowed hope where others scattered the ashes of despair. He was love Incarnate (John 1:14; 1 John 4:16). We need that character of divine love if we’re to see and minister to the hurts of others.

America has made strides in recognizing and assisting people with disabilities. Most public facilities are now accessible to the handicapped. The pool where I swim has a lift for the disabled. The law rightly forbids discriminating against the handicapped (see Lev. 19:14, Deut. 27:18, Matt. 25:40).

In the Christian community, Joni Eareckson Tada has raised people’s awareness of the needs of those who suffer from severe disabilities. She has encouraged the afflicted not to despair, but to trust God to use their broken lives for the glory of God and the good of others.

Still, many disabled people continue to suffer both chronic physical distress and misunderstanding. Their suffering is masked by a healthy appearance. They are not in wheelchairs and do not use canes. Yet their pain and debility is real and chronic. They have "invisible disabilities."

It may be the soul-sapping fatigue, environmental sensitivity, and chronic pain of fibromyalgia, or lupus, or Lyme disease, or multiple sclerosis. These souls suffer not only from their diseases, but also often from the uninformed and hurtful reactions of others.

Those suffering from fibromyalgia, such as my wife, often ricochet from one physician to another, repeatedly encountering the impatience and defeatism that often characterize the medical community's attitude toward those whose ailments are intractable, invisible, and (usually) non-terminal. Insurance routinely refuses to cover needed treatments. Worse yet, loved ones frequently do not understand the nature of their invisible disability and respond wrongly.

When someone looks healthy, we are tempted to tell them to "just buck up" and do what we think they should do. Those with invisible disabilities are often expected to do what is beyond them. We would never tell someone who uses a cane to run a marathon, but just going to the store may be a marathon for someone with lupus.

A seminary student of mine looks healthy, yet he suffers from such chronic and extreme back pain that he lost his medical practice. He also lost a friend who could not accept the limitations that chronic illness put on their relationship.

What can Christians do to discern people’s invisible disabilities and display the love of Christ?

First, we can empathize with them, instead of lecturing or ignoring them. The Book of Hebrews tells us to remember those in prison as though we were shackled with them (13:3). Similarly, we must try to put ourselves into the prison of the chronically ill person’s life. This is difficult, and almost nothing in our hedonistic culture encourages it. Nevertheless, we need empathy to be agents of love and encouragement. Jesus wept; so should we (John 11:35).

Second, we should listen to and believe what the afflicted tell us. My wife looks so healthy and fit that someone in the locker room where we swim thought she was a woman who’d been swimming at top speed for an hour. But if you listen to Rebecca’s story — one of pain and frustration mixed with faith and determination — you’ll find things quite different from how they appear.

Third, we can look for ways to minister to those we know with such conditions. Sherri Connell’s web site, The Invisible Disabilities Advocate, (www.InvisibleDisabilities.com) offers a wealth of materials. Sherri, who suffers from an invisible disability, has a big heart, an indomitable spirit, and much practical and spiritual advice.

Let us seek to have the eyes of Jesus, so we may look beyond appearances and gaze deeply into the lives of those who are suffering. Then we can offer them our love, understanding, and encouragement.

6 comments:

  1. Those suffering from fibromyalgia, such as my wife, often ricochet from one physician to another, repeatedly encountering the impatience and defeatism that often characterize the medical community's attitude toward those whose ailments are intractable, invisible, and (usually) non-terminal. Insurance routinely refuses to cover needed treatments. Worse yet, loved ones frequently do not understand the nature of their invisible disability and respond wrongly.

    I could sign my name to this paragraph and every word of it would be true.

    People with these conditions just want to be believed more than anything else in the world. There aren't words to describe the frustration when your doctors are telling your loved one that they're just imagining the pain or family members helpfully inform them that their real problem is that they've just gotten "fat and lazy".

    Thanks so much for posting this.

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  2. Thank you for the IDA website.I know 2 dear people suffering from fibromyalgia. You would never know except that, on some days, their eyes lose their brightness, their steps are slower, their shoulders sag as if carrying an invisible weight. Many doctors don't realize that real, sharp pain sometimes affects the person with that illness. It's not just tiredness and lack of energy.

    The medical world is trained to deal with visible physical damages. After a series of tests, a doctor referred a friend to a psychiatrist. I was ashamed. I'm a R.N., and I had sent my friend to this doctor. He didn't have a clue...

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  3. Oh how I can relate to all of this! I think one of the most painful side effects of an invisible disability is the loneliness. If it wasn`t for my sister who also has an invisible disability and places like this site, I would have gone crazy from the isolation. Like I said before, validation is a soothing balm and the Lord is certainly using Doug to give that to more people than he knows.
    Sometimes you wonder how any fruit can come of these afflictions that cause broken family relationships, broken friendships, inability to even go to church or do anything seemingly fruitful other than delegate precious time to either doing standard errands or much needed studying. But after being disabled for going on sixteen years now and slowly learning to see things through the light of the cross, I have come to trust God that He is fertilizing and pruning maximal fruit from me for Him and others. But at times I still mourn the diminshing effects of my intellectual capacities. I have hundreds of books, most of yours too Doug, that I am only able to just gaze at from afar on some days, like a kid in a candy store, wishing I could just immerse myself in them. The chronic Fatigue part of this illness has especially affected my brain. But I do have some good days and then I do read...like right now I am reading "Good News for Women". What an wonderfully eye opening book it is too! I will have to email Rebecca and tell her what a huge difference this has made in my life. You guys are great!
    Anyway, if it wasn`t for this illness I dare say I would have not discovered you two and many other great christian authors out there. As bad as this illness can get, I would not trade what I have gained with the Lord for any thing, including perfect health. For "it is through much suffering we must enter the Kingdom of God"

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  4. Corbin:

    Blessings on you for your comments. I'm glad this blog is ministering to you somewhat.

    Yes, "brain fog" (from chronic illness) is a terrible and frustrating thing. I've seen it. I hate it. It is not a lack of intelligence but a filter on intelligence. May God heal you of it and much more.

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  5. Thank you for putting up this blog, this has the chance to be a wonderful resource for people out there.

    My wife has a chronic degenerative disc condition in her back, which has kept her on the couch or in bed for most of the past 4 months. She is 31 years old and can't teach or keep much of a social life. We also had to relocate. She is checking in to this blog regularly, and it is a great encouragement to her.

    I just wanted to let you know there is another person out there to whom this blog is a great thing. Thanks again.

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  6. Great idea for a blog!

    It seems like there are so few out there who really understand what a chronic illness entails. One time I wrote "Empathy is never 100%" lamenting that very fact.

    But your blog is a big step in the right direction.

    As you know, we don't want pity...we just want some comaraderie. Partners in arms. Illness is such a lonely and misunderstood path.

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